FOI – 2024-000340 haemophilia A and B coagulation factors (HTML)

Date received – 30 September 2024 | Date responded – 28 October 2024

Request

In the last 3 months (July, August, September 2024), how many haemophilia A and B patients were treated with the following coagulation factors in your trust and how much volume (IUs or mg) was used?

Response

We have now completed the search of our records and can provide you with the following information:

Under Section 17 of the Freedom of Information Act, 2002 (FOISA) an organisation does not have to provide that information if it does not hold it. NHS National Services Scotland (NSS) does not hold all the information you have requested.

What we can provide you with is:

• Appendix 1 – homecare delivery of coagulation factors, detailing information National Procurement, part of NSS hold in relation to framework NP30124 homecare deliveries of clotting medicines. Where we have stated ‘No Data’ we currently do not hold this.
• Appendix 2 – Patients treated in the West of Scotland, details the total usage for patients seen in the Glasgow centre for July & August only. The figures include Home Delivery & Pharmacy Issue. Due to staffing issues in NHS Lothian, we have no data available for drug usage in the East of Scotland.

For the information we do hold, please note there will be other usage in hospitals that is not captured in these appendices.

Under Section 38(1)(b) of the Freedom of Information Scotland Act 2002 (FOISA), NSS has redacted details where patient numbers are 5 or below to protect their identity in line with the Caldicott Principles.

I trust you will find the information of assistance and if you require any further information, please do not hesitate to contact us.

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Contact

Address

If after a review you are still unhappy, you also have the right to apply to the Scottish Information Commissioner, who can be contacted at Kinburn Castle, St Andrews, Fife, KY16 9DS, or via their application form.

National Services Scotland (NSS) is committed to publishing all information released in response to Freedom of Information requests. You can view all FOI responses within our FOI Publications repository.