FOI – 2024-000051 Total Generalized Myasthenia Gravis Patients Treated in Hospitals (HTML)

Date received – 25 January 2024 | Date responded – 21 February 2024

Request

1. How many total generalized Myasthenia Gravis patients were treated in the hospitals (Inpatient & Outpatient)
2. How much volume in mg was used for the following therapies: Immunosuppressants

• Azathioprine
• Methotrexate
• Mycophenolate mofetil

Anti-CD20 - Rituximab

• MabThera
• Rituximab Biosimilars

Anti-FcRn

• Vyvgart (Efgartigimod)

Complement Inhibitors

• Soliris (Eculizumab)
• Ultomiris (Ravulizumab)

Response

I refer to your freedom of information request that we received on 25 January 2024 requesting the following information.

1. How many total generalized Myasthenia Gravis patients were treated in the hospitals (Inpatient & Outpatient)

2. How much volume in mg was used for the following therapies:

Immunosuppressants

• Azathioprine
• Methotrexate
• Mycophenolate mofetil

Anti-CD20 - Rituximab

• MabThera
• Rituximab Biosimilars

Anti-FcRn

• Vyvgart (Efgartigimod)

Complement Inhibitors

• Soliris (Eculizumab)
• Ultomiris (Ravulizumab)

I can advise we have now completed a search of our records and can provide you with the following information:

Under Section 17 of the Freedom of Information Scotland Act, 2002 (FOISA) an organisation does not have to provide that information if it does not hold that information. NHS National Services Scotland (NSS) does not hold information on generalized Myasthenia Gravis patients treated. I would advise contacting the individual health boards who may hold the requested information, addresses are as follows:

• Ayrshire and Arran - foi@aapct.scot.nhs.uk
• Borders – foi.enquiries@borders.scot.nhs.uk
• Dumfries and Galloway – dg.feedback2@nhs.scot
• Fife – fife.foirequestfife@nhs.scot
• Forth Valley – fv.freedomofinformation@nhs.scot
• Grampian – gram.foi@nhs.scot
• Greater Glasgow & Clyde – foi@ggc.scot.nhs.uk
• Highland – nhsh.foirequestshighland@nhs.scot
• Lanarkshire – foi@lanarkshire.scot.nhs.uk
• Lothian – foi@nhslothian.scot.nhs.uk
• Orkney – ORK.FOIrequests@nhs.scot
• Shetland – shet.foi@nhs.scot
• Tayside – tay.informationgovernance@nhs.scot
• Western Isles – wi.foi-requests@nhs.scot
• NHS24 – foi@nhs24.scot.nhs.uk
• NHS National Waiting Times Centre – FOI@gjnh.scot.nhs.uk
• Scottish Ambulance Service – sas.foi@nhs.scot
• Healthcare improvement Scotland - his.foi@nhs.scot
• Mental Welfare Commission for Scotland - mwc.enquiries@nhs.scot
• NHS Education for Scotland - foidp@nes.scot.nhs.uk
• Public Health Scotland - PHS.FOI@phs.scot
• State Hospital Board for Scotland - tsh.info@nhs.scot

I trust you will find the information of assistance and if you require any further information, please do not hesitate to contact us.

If you are unhappy with any aspect of how we have dealt with your request, you can make representations to us asking us to review the handling of your request.

If you require any further information, please contact Head of Information and Cyber Security, Digital and Security within 40 working days of the date of this correspondence.

Contact

Address

If after a review you are still unhappy, you also have the right to apply to the Scottish Information Commissioner, who can be contacted at Kinburn Castle, St Andrews, Fife, KY16 9DS, or via their application form.

National Services Scotland (NSS) is committed to publishing all information released in response to Freedom of Information requests. You can view all FOI responses within our FOI Publications repository.